Volunteer

Social Media & Fundraising Volunteer

Support a rare disease charity and build your professional experience

Are you a student or early-career professional looking to gain hands-on experience in social media, communications, and charity work? SLC6A1 Connect UK is seeking a Volunteer to help us grow our online presence and connect with families affected by the rare neurological condition SLC6A1.

This opportunity is available on a short-term basis (for example, 6 months) for those seeking experience, or for individuals interested in making a longer-term contribution to a small rare diseases charity.

What You’ll Do                                                            

• Create and schedule engaging social media content across platforms, including LinkedIn
• Help us raise awareness of SLC6A1 and our community’s needs
• Support campaigns, events, and fundraising efforts
• Collaborate with trustees and families to share stories and updates

Why Join Us?

• “The charity gives me hope and comfort that someone is working tirelessly to help find a cure for our children.” - Dan, parent of a six-year-old diagnosed with SLC6A1
• “The charity is the only resource available to myself and my family with knowledge of my son's rare genetic disease. It provides emotional support, in addition to offering relevant information and referrals to other professionals and families. By collaborating through this network, we are better positioned to pursue a cure or treatment.” - Helen, parent of an individual diagnosed with SLC6A1 at the age of 30
• “Volunteering with SLC6A1 Connect UK has given me a sense of purpose and belonging during a journey that can often feel isolating. Being part of this community means connecting with others who truly understand, sharing hope, supporting vital research, and working together to create a better future for our children.”

You’ll be joining a charity that is:

• Led by lived experience
• Focused on impact and innovation
• Ready to grow with your guidance

What We Offer

• Flexible hours to fit around your studies or work
• Mentorship and support from experienced trustees
• A chance to gain experience and references for future employment
• Real impact in a community that needs your voice

FAQs

“I don’t have much time.”
We’re looking for someone who can commit around 2-4 hours per week, but we’re flexible.

“I’ve never worked in a charity before.”
 No problem! We’ll support you and help you learn as you go.

How to Apply

Send your CV and a short cover letter to Lindsay Randall (lindsay.randall@slc6a1connectuk-aq.org) by Wednesday 5^th November 2025. If you have any questions about this position, please reach out to Lindsay.

This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.