Treasurer

Treasurer - ARFID Awareness UK

This is a fully remote role

Remuneration

Travel and subsistence will be paid for attendance at meetings in accordance with the ARFID Awareness UK expense policy where required. Board members are not remunerated for their Board/trustee work.  

Responsible to:

Chair of Board of Trustees

Regular liaison with: 

• Board of Trustees 
• Executive Director/s
• Motion Accountancy  

Duration of appointment:

Three-year term (with a possible extension of a further three years)

Overview:

Established in 2019 and supporting a community of over 30,000 families ARFID Awareness UK is the only registered UK charity dedicated to raising awareness and further information about Avoidant/Restrictive Food Intake Disorder.  As a not-for-profit, we work to provide individuals, parents, carers and medical professionals with up-to-date relevant information, research and support.

 We are equally committed to supporting medical professionals across varying specialities, by equipping them with the information they need to ensure that their patients receive an early diagnosis and have access to appropriate care.

Our charitable aims are to: 

1. Raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine; 
2. Providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care;
3. Facilitating research into the condition, the useful results of which will be published for the public benefit; 
4. Potentially providing grants of financial assistance to enable economically disadvantaged families to obtain necessary treatment and medication unavailable via the NHS.   
5. Advancing the education of the public in the subject of ARFID.

With regards to our structure, we are a Charitable Incorporated Organisation (CIO). As a CIO, our Charity Trustees are protected with limited liability, and whilst they are responsible for helping to manage the organisation, they do not hold dual roles of Company Director as they might with other charity structures.

Time commitment:

Trustees meet twice a year virtually. Meetings last approximately 2 hours.  

The Remuneration and Finance, Risk and Investment Committee meet once a year virtually. Meetings last approximately 1 hour.  

In addition, Trustees are expected to allow time for reading of papers and preparation for meetings, attending events training and induction.   As a small charity there may also be the requirement for additional input up to 10 hours per annum as required specifically to your professional background and expertise

Purpose of the role:

Trustee (general)

The overall aim of the trustee role is to provide strong leadership, direction and expertise to the governance of ARFID Awareness UK. 

The Board of trustees (‘the Board’) is the body with the legal duty to protect the mission and vision of the FSRH and to ensure that it is run in accordance with legal requirements.

 The role of the Board is to provide good governance and leadership by: 

• Shaping ARFID Awareness UK’s organisational strategy 
• Approving organisational statutory policy 
• Ensuring the organisation’s financial stability and sustainability, and agreeing the annual operational budget 
• Appointing the Executive Director/s (who is overseen by the Chair of the Board on behalf of the Board) 
• Providing support and constructive challenge to the Executive Director/s and their staff team 
• Setting and monitoring procedures for assessing and managing risk 
• Taking advice from Board members and external specialist advisors 
• Ensuring oversight of the financial position of the charity and providing updates to the Board where appropriate.

As a charity and CIO Board members are charity trustees only. They do not represent any group or organisation in this role, and they must act in good faith and in the best interests of ARFID Awareness UK. 

Treasurer 

• Chair the Remuneration and Finance, Risk and Investment Committee (FR&IC):
• To review progress of financial elements of the operational plan and make recommendations to the Board of Trustees.
• To review the strategic plan in context of financial and budgetary impact. 
• To review the annual budget and make recommendations to the trustees.
• To receive and review proposals for new expenditure outside of the annual budget 
• Advise the Remuneration Committee on the affordability of any changes to pay and or benefits.
• To receive reports at each meeting on financial performance and report as required to the Trustees 
• To develop an Investment Policy and strategy
• To review the draft annual accounts along with the audit report, ensuring they are in accordance with relevant accounting standards and Charity Commission guidance

Person specification:

Essential:

• A financial accountancy qualification or equivalent experience (eg ACA, CIMA)
• Experience of investment, strategic planning and budgetary planning 
• Ability to work effectively as a member of a diverse team whilst keeping in mind the responsibility of being an individual trustee  
• Experience of guiding an organisation through growth and change  
• Confident and effective communication skills including listening skills  
• Understanding of the legal duties, responsibilities and liabilities of trusteeship 

Desirable:

• Knowledge or experience of the charity sector 
• Knowledge of the healthcare sector and/or ARFID

Experience of board or committee membership in a charity, public sector or commercial organisation.  

To apply please email your CV and covering letter to recruitment@arfidawarenessuk.org by 17 November 2025.  Interviews are likely to take place the first week of December.

This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.